A tribute to fallen Madison Scouts Alumni with ALS
Steve Weekes , who marched in the Madison Scouts in 1981, 1982, and 1983, and who instructed the Madison Scouts from 1984 to 1989, was diagnosed with ALS in 1999. Those of you, who knew Steve, were probably not surprised when Steve responded to his diagnosis, not only with bravery, dignity, and pride, but also with a commitment to ruthlessly battle his disease - not only on a personal level, but also in the healthcare community as a lightning rod to galvanize others around his crusade. Very soon after being diagnosed with ALS, Steve Weekes began to organize his soldiers in this battle.
Steve began a very public crusade to battle ALS by enlisting the support of his immediate family members, and then reached out to his friends in the band, Wall of Sound, and his friends and brothers within the organization of the Madison Scouts Drum and Bugle Corps. And with the support of these many individuals, Steve created what has come to be known as Rockin' for a Cure. What Steve created is not simply an event, but a spirit, energy, and a force aimed directly at beating this disease, and that means raising awareness and research funds to find a cure. Steve was given a challenge through his disease. Steve accepted this challenge and then gave us a choice to join him in this challenge. And, many, many of us climbed in the trenches with him.
Our mission throughout the years to come, will be to support Steve's family and to honor Steve always by championing his commitment to curing ALS. Steve realized that the manner in which we should do this, should involve the things that were closest to him - his family, his friends, and his music. And so, once a year, Steve wants us to throw not just a little party, but a Rockin' Party. We're going to laugh among friends. We're going to hear some great music. And later in the evening, we're going to gather as alumni and family of the Madison Scouts and sing "You'll Never Walk Alone."
It has now been a week since my dad has been gone. These past 3 years have been very challenging and hard. I can remember the day that my mom had come home and told me that it was possible that Dad had Lou Gehrig's Disease. I couldn't and didn't want to believe it. And now 3 ½ years later, he has gone before us.
Let me describe my dad the way that many have. Stubborn, opinionated, loud, interesting, different, argumentative, confrontational, caring, loving, tender, helpful, giving, full of colorful language and the list could go on and on.
As my family and I planned his services, we dug up the many stories that we had been privy to over the years. Most of the stories had to do with how he stuck his neck out for someone else in some way to help them through some experience or situation. Dad lived by the song that linked him to Muscular Dystrophy (a cause that he had supported since he was a teenager) to his love of Drum and Bugle Corps. This song is called "You'll Never Walk Alone" by Rogers and Hammerstein.
I don't know if you knew this but Jerry Lewis sang it every year on the MDA Telethon. When my parents started dating back in the late 60's early 70's, my mom can remember him asking everyone if they had donated to MDA. In the early 60's he marched with the Madison Scouts Drum and Bugle corps. This was also their corps song. This was a very strange coincidence. Every time I hear the music and words it makes me cry. The words are as follows:
"When you walk through a storm,
Hold your head up high
And don't be afraid of the dark.
At the end of the storm,
There's a golden sky
And the sweet silver song of a lark
Walk on through the wind,
Walk on through the rain
Though your dreams be tossed and blown.
Walk on, walk on,
With hope in your heart
And you'll never walk alone
You'll never walk alone."
Dad knew that when someone was in need that he would be there to help him or her in some way. His service to the community started when he was a teenager. At this time in his life he worked at Central Colony with handicap people. As he got older he continued to be caring with others and be a good friend to them. He would go to any lengths to help out a friend in need. One case happened when he had a friend that was fired from a job and was stuck in a dead end town in Michigan with no money or vehicle to move herself from point A to B. He told that friend to pack her bags cause he was coming to get her. He felt pretty good about that. That person stayed in our home with our entire family for 2 ½ years while she got back on her feet.
At the funeral, this person was ever so thankful for everything that Dad did. She said that she had no doubt that if she would have stayed in Michigan she would have not been able to start over. He made all the difference. This story relates to the common good for me. The reason being is that now she is living on her own, teaching in an Indian Reservation, making a difference in someone else's life. Reminds me of the movie "Pay It Forward". If you haven't seen it you might want to check it out. My family's journey without our father and husband is now starting. I know that he is in a better place now. All the times that we had fought and argued are now null and void. I am very thankful to have had the time to mend those issues and to let him go in peace.
My family and I were all there that day he took his final breath. It was hard to watch him leave us like he did. After he passed away, we all saw how much the spirit really is who we are. Without the spirit, we have no life, color, or expression. I miss him and his smile very much. I miss that reaction of what would happen when I would walk in to the room. I miss the fact that I can't call at 10:30pm to kick him off the Internet after being on all day so that I could have a chance. I miss calling him some quirky name and getting him to smile or laugh because of it. I miss him so much. He will forever be in my heart.
You'll Never Walk Alone
Charles Eikel III passed away in 2010 of complications due to ALS. Chuck graduated from Madison West High School in 1957, earned a degree from UW Platteville, and a Masters from West Chester University near Philadelphia, Pa, where he met and married Claire Girvan. Chuck worked in Public Relations for Cuna Mutual for over 25 years, retiring in 2002. He was a member of the Madison Scouts and had a lifelong passion for Drum and Bugle Corps. He was an accomplished chef, with many published Creole recipes, and also volunteered for many political campaigns.
Chuck Eikel played soprano bugle for the Madison Scouts in the 1950s. He continued his support of the corps by serving on the board of directors in the 1970s and 80s and was instrumental in developing corporate support for the corps in the Madison community. In 2010, Chuck passed away from complications due to ALS (Lou Gehrig's disease), but his support lives on. Chuck's fellow alumni, The Madison Scouts of the 50′s Alumni Group, collected funds in Chuck's memory. Gordon Cnare contacted the corps and designated the donation be used to purchase new trumpets (sopranos) in Chuck's honor. As well, a very generous donation was made on behalf of the Charles Eikel Estate through his daughter Siobhan McGuire.
You'll Never Walk Alone